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Dec 12, 2023
#RareShowcase23 Lightning Talk Lara Bloom - How project ECHO can help rare diseases
At the London Rare Disease Showcase, Lara shared the work of The Ehlers-Danlos Society using project ECHO to help rare disease, with a...
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Dec 8, 2020
Findacure: The Virtual Rare Disease Showcase - The Clinical Trial Landscape Post COVID-19
Lara Bloom presents on The HEDGE Study, Enrolling For A Research Stuy In A Virtual World Lara Bloom presents at 1.10.33 / 1.27.55
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Dec 8, 2020
Findacure: The Virtual Rare Disease Showcase - The Impact of COVID-19 on Rare Diseases
Lara Bloom presents on Adapting to Life in a Global Pandemic, COVID-19 and Rare & Chronic Health Lara Bloom presents at 23.00 / 1.50.59
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Mar 14, 2019
MetaECHO Talk 2019: EDS ECHO - Together We Will Dazzle
Lara Bloom gives talk on EDS ECHO - the first ECHO for a Rare Disease. MetaECHO 2019 brought together health policy experts, government...
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Mar 2, 2017
EDS 2017 Criteria Press Conference
Lara Bloom and Dr. Clair Francomano held a press conference at GBMC to discuss the new criteria and management and care guidelines being...
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Feb 2, 2017
Strength Begins With Hope
This talk at the international symposium in NYC gave me the opportunity to share the story of why I do what I do. Subscribe
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"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
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- Lara Bloom
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