EDS & Me VLOG Episode Forty Four: Behind the Scenes of our Global Learning Conference!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
top of page
VLOG
News & Media
Search
Aug 6
EDS & Me VLOG Episode Forty Three: European Conference Season
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
May 23
EDS & Me VLOG Episode Forty Two: Springtime in New York
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Mar 25
EDS & Me VLOG Episode Forty One: Lots of fun in quarter one!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jan 18
EDS & Me VLOG Episode Forty: Wrapping up the year
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Nov 23, 2023
EDS & Me VLOG Episode Thirty-Nine: Madonna, Pumpkins and Everything in Between
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Sep 20, 2023
EDS & Me VLOG Episode Thirty Eight: Summer
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jul 3, 2023
EDS & Me VLOG Episode Thirty Seven: Hopping around Europe
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
May 31, 2023
EDS & Me VLOG Episode Thirty Six: Springtime in New York
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Apr 18, 2023
EDS & Me VLOG Episode Thirty Five: Adapting to life as a Mama
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Mar 14, 2023
EDS & Me VLOG Episode Thirty Four: Welcome To The World Lola!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jan 6, 2023
EDS & Me VLOG Episode Thirty Three: Jingle All The Way
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Dec 7, 2022
EDS & Me VLOG - Episode Thirty Two: Seasons Changing
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Oct 27, 2022
EDS & Me VLOG - Episode Thirty One: A Very Busy Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Aug 19, 2022
EDS & Me VLOG - Episode Thirty: The Circle of Life...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jun 17, 2022
EDS & Me VLOG - Episode Twenty Nine: On the road again...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Apr 19, 2022
EDS & Me VLOG - Episode Twenty Eight: Highs and Lows
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Mar 11, 2022
EDS & Me VLOG - Episode Twenty Seven: First VLOG of 2022
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jan 20, 2022
EDS & Me VLOG - Episode Twenty Six: Winter
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Nov 17, 2021
EDS & Me VLOG - Episode Twenty Five: Fall
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
- Lara Bloom
bottom of page