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Aug 27, 2024
EDS & Me VLOG Episode Forty Four: Behind the Scenes of our Global Learning Conference!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Aug 6, 2024
EDS & Me VLOG Episode Forty Three: European Conference Season
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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May 23, 2024
EDS & Me VLOG Episode Forty Two: Springtime in New York
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Mar 25, 2024
EDS & Me VLOG Episode Forty One: Lots of fun in quarter one!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Jan 18, 2024
EDS & Me VLOG Episode Forty: Wrapping up the year
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Nov 23, 2023
EDS & Me VLOG Episode Thirty-Nine: Madonna, Pumpkins and Everything in Between
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Sep 20, 2023
EDS & Me VLOG Episode Thirty Eight: Summer
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Jul 3, 2023
EDS & Me VLOG Episode Thirty Seven: Hopping around Europe
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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May 31, 2023
EDS & Me VLOG Episode Thirty Six: Springtime in New York
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Apr 18, 2023
EDS & Me VLOG Episode Thirty Five: Adapting to life as a Mama
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Mar 14, 2023
EDS & Me VLOG Episode Thirty Four: Welcome To The World Lola!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jan 6, 2023
EDS & Me VLOG Episode Thirty Three: Jingle All The Way
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Dec 7, 2022
EDS & Me VLOG - Episode Thirty Two: Seasons Changing
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Oct 27, 2022
EDS & Me VLOG - Episode Thirty One: A Very Busy Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Aug 19, 2022
EDS & Me VLOG - Episode Thirty: The Circle of Life...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jun 17, 2022
EDS & Me VLOG - Episode Twenty Nine: On the road again...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Apr 19, 2022
EDS & Me VLOG - Episode Twenty Eight: Highs and Lows
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Mar 11, 2022
EDS & Me VLOG - Episode Twenty Seven: First VLOG of 2022
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jan 20, 2022
EDS & Me VLOG - Episode Twenty Six: Winter
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Nov 17, 2021
EDS & Me VLOG - Episode Twenty Five: Fall
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
​
- Lara Bloom
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