News & Media

Jun 6, 2019

EDS & Me VLOG - Episode Five: My EDS Challenge

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...

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May 10, 2019

EDS & Me VLOG - Episode Four: Rest, and breathe

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...

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Apr 10, 2019

EDS & Me VLOG - Episode Three: Make a Wish

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...

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Mar 6, 2019

EDS & Me VLOG - Episode Two: No More Excuses!

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...

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Jan 27, 2019

EDS & Me VLOG - Episode One: New Years Resolutions

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...

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"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom