News & Media

Aug 8, 2019

EDS & Me VLOG - Episode Seven: It's Conference Season

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...

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Jul 18, 2019

Hypermobility Happy Hour Podcast

Episode 09: Interview with Lara Bloom, International Director of the Ehlers-Danlos Society Dr. Bluestein chats with Lara Bloom about her...

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Jul 11, 2019

EDS & Me VLOG - Episode Six: On The Road...

Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...

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"Never underestimate the power of the patient voice.

Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."

- Lara Bloom