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VLOG
EDS & Me VLOG
EDS & Me VLOG Episode Forty Four: Behind the Scenes of our Global Learning Conference!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Aug 27, 2024
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EDS & Me VLOG Episode Forty Three: European Conference Season
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Aug 6, 2024
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EDS & Me VLOG Episode Forty Two: Springtime in New York
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
May 23, 2024
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EDS & Me VLOG Episode Forty One: Lots of fun in quarter one!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Mar 25, 2024
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EDS & Me VLOG Episode Forty: Wrapping up the year
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jan 18, 2024
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EDS & Me VLOG Episode Thirty-Nine: Madonna, Pumpkins and Everything in Between
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Nov 23, 2023
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EDS & Me VLOG Episode Thirty Eight: Summer
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Sep 20, 2023
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EDS & Me VLOG Episode Thirty Seven: Hopping around Europe
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jul 3, 2023
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EDS & Me VLOG Episode Thirty Six: Springtime in New York
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
May 31, 2023
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EDS & Me VLOG Episode Thirty Five: Adapting to life as a Mama
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Apr 18, 2023
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EDS & Me VLOG Episode Thirty Four: Welcome To The World Lola!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Mar 14, 2023
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EDS & Me VLOG Episode Thirty Three: Jingle All The Way
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jan 6, 2023
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EDS & Me VLOG - Episode Thirty Two: Seasons Changing
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Dec 7, 2022
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EDS & Me VLOG - Episode Thirty One: A Very Busy Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Oct 27, 2022
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EDS & Me VLOG - Episode Thirty: The Circle of Life...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Aug 19, 2022
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EDS & Me VLOG - Episode Twenty Nine: On the road again...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jun 17, 2022
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EDS & Me VLOG - Episode Twenty Eight: Highs and Lows
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Apr 19, 2022
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EDS & Me VLOG - Episode Twenty Seven: First VLOG of 2022
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Mar 11, 2022
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EDS & Me VLOG - Episode Twenty Six: Winter
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jan 20, 2022
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EDS & Me VLOG - Episode Twenty Five: Fall
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Nov 17, 2021
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EDS & Me VLOG - Episode Twenty Four: Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Oct 5, 2021
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EDS & Me VLOG - Episode Twenty Three: Spring
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Aug 11, 2021
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EDS & Me VLOG - Episode Twenty Two: New Year, New Beginnings Part One
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jul 8, 2021
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EDS & Me VLOG - Episode Twenty One: Lockdown, Loss and Love
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Jan 6, 2021
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EDS & Me VLOG - Episode Twenty: We bought a house!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Sep 8, 2020
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EDS & Me VLOG - Episode Nineteen: Doctors, Vets, and everything inbetween!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
Aug 12, 2020
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EDS & Me VLOG - Episode Eighteen: I became a Professor!!!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jul 15, 2020
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EDS & Me VLOG - Episode Seventeen: Everyday Life
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Jun 8, 2020
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EDS & Me VLOG - Episode Sixteen: Living in Lockdown
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
May 11, 2020
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EDS & Me VLOG - Episode Fifteen: Turning 40 & Living Through COVID-19
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Apr 14, 2020
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EDS & Me VLOG - Episode Fourteen: Team Zebra in London!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Mar 10, 2020
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EDS & Me VLOG - Special Episode: Cambodia & Vietnam Cycle Challenge
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Mar 6, 2020
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EDS & Me VLOG - Episode Thirteen: A New Decade...
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Feb 7, 2020
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EDS & Me VLOG - Episode Twelve: The Jewish Elf's Christmas
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Feb 7, 2020
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EDS & Me VLOG - Episode Eleven: Big in Japan!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Feb 7, 2020
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EDS & Me VLOG - Episode Ten: Falling Leaves, Keto and Halloween Fun
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Nov 11, 2019
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EDS & Me VLOG - Episode Nine: East Coast - West Coast
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Oct 8, 2019
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EDS & Me VLOG - Episode Eight: Dazzling in Nashville
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Sep 4, 2019
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EDS & Me VLOG - Episode Seven: It's Conference Season
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Aug 8, 2019
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EDS & Me VLOG - Episode Six: On The Road...
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
Jul 11, 2019
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EDS & Me VLOG - Episode Five: My EDS Challenge
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
Jun 6, 2019
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EDS & Me VLOG - Episode Four: Rest, and breathe
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
May 10, 2019
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EDS & Me VLOG - Episode Three: Make a Wish
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
Apr 10, 2019
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EDS & Me VLOG - Episode Two: No More Excuses!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
Mar 6, 2019
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EDS & Me VLOG - Episode One: New Years Resolutions
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
Jan 27, 2019
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"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
- Lara Bloom
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