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VLOG
EDS & Me VLOG
Aug 27, 2024
EDS & Me VLOG Episode Forty Four: Behind the Scenes of our Global Learning Conference!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Aug 6, 2024
EDS & Me VLOG Episode Forty Three: European Conference Season
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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May 23, 2024
EDS & Me VLOG Episode Forty Two: Springtime in New York
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Mar 25, 2024
EDS & Me VLOG Episode Forty One: Lots of fun in quarter one!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Jan 18, 2024
EDS & Me VLOG Episode Forty: Wrapping up the year
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Nov 23, 2023
EDS & Me VLOG Episode Thirty-Nine: Madonna, Pumpkins and Everything in Between
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Sep 20, 2023
EDS & Me VLOG Episode Thirty Eight: Summer
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Jul 3, 2023
EDS & Me VLOG Episode Thirty Seven: Hopping around Europe
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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May 31, 2023
EDS & Me VLOG Episode Thirty Six: Springtime in New York
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Apr 18, 2023
EDS & Me VLOG Episode Thirty Five: Adapting to life as a Mama
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Mar 14, 2023
EDS & Me VLOG Episode Thirty Four: Welcome To The World Lola!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jan 6, 2023
EDS & Me VLOG Episode Thirty Three: Jingle All The Way
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Dec 7, 2022
EDS & Me VLOG - Episode Thirty Two: Seasons Changing
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Oct 27, 2022
EDS & Me VLOG - Episode Thirty One: A Very Busy Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Aug 19, 2022
EDS & Me VLOG - Episode Thirty: The Circle of Life...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jun 17, 2022
EDS & Me VLOG - Episode Twenty Nine: On the road again...
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Apr 19, 2022
EDS & Me VLOG - Episode Twenty Eight: Highs and Lows
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Mar 11, 2022
EDS & Me VLOG - Episode Twenty Seven: First VLOG of 2022
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jan 20, 2022
EDS & Me VLOG - Episode Twenty Six: Winter
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Nov 17, 2021
EDS & Me VLOG - Episode Twenty Five: Fall
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Oct 5, 2021
EDS & Me VLOG - Episode Twenty Four: Summer
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Aug 11, 2021
EDS & Me VLOG - Episode Twenty Three: Spring
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jul 8, 2021
EDS & Me VLOG - Episode Twenty Two: New Year, New Beginnings Part One
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jan 6, 2021
EDS & Me VLOG - Episode Twenty One: Lockdown, Loss and Love
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Sep 8, 2020
EDS & Me VLOG - Episode Twenty: We bought a house!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Aug 12, 2020
EDS & Me VLOG - Episode Nineteen: Doctors, Vets, and everything inbetween!
Join me around the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President...
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Jul 15, 2020
EDS & Me VLOG - Episode Eighteen: I became a Professor!!!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Jun 8, 2020
EDS & Me VLOG - Episode Seventeen: Everyday Life
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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May 11, 2020
EDS & Me VLOG - Episode Sixteen: Living in Lockdown
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Apr 14, 2020
EDS & Me VLOG - Episode Fifteen: Turning 40 & Living Through COVID-19
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Mar 10, 2020
EDS & Me VLOG - Episode Fourteen: Team Zebra in London!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Mar 6, 2020
EDS & Me VLOG - Special Episode: Cambodia & Vietnam Cycle Challenge
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Feb 7, 2020
EDS & Me VLOG - Episode Thirteen: A New Decade...
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Feb 7, 2020
EDS & Me VLOG - Episode Twelve: The Jewish Elf's Christmas
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Feb 7, 2020
EDS & Me VLOG - Episode Eleven: Big in Japan!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Nov 11, 2019
EDS & Me VLOG - Episode Ten: Falling Leaves, Keto and Halloween Fun
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Oct 8, 2019
EDS & Me VLOG - Episode Nine: East Coast - West Coast
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Sep 4, 2019
EDS & Me VLOG - Episode Eight: Dazzling in Nashville
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Aug 8, 2019
EDS & Me VLOG - Episode Seven: It's Conference Season
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Jul 11, 2019
EDS & Me VLOG - Episode Six: On The Road...
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
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Jun 6, 2019
EDS & Me VLOG - Episode Five: My EDS Challenge
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
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May 10, 2019
EDS & Me VLOG - Episode Four: Rest, and breathe
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
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Apr 10, 2019
EDS & Me VLOG - Episode Three: Make a Wish
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President and...
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Mar 6, 2019
EDS & Me VLOG - Episode Two: No More Excuses!
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
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Jan 27, 2019
EDS & Me VLOG - Episode One: New Years Resolutions
Join me round the world campaigning, advocating and raising awareness of chronic, invisible and rare diseases in my role as President &...
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"Never underestimate the power of the patient voice.
Our narrative brings the purpose, the reason and the emotion. Without it, a project is not complete."
- Lara Bloom
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